Monday, August 11, 2014

Stressed? It Will Be Okay! (Part Two)



It had been almost a year since Amy and the twins, Taylor and Tyler, had visited, and there’s a big difference between 6-month olds and 18-month olds. Now they can walk, dance, feed themselves, imitate the sounds that animals make, identify body parts, talk mostly in nouns, communicate with some sign language, and do the actions to Ten Little Monkeys Jumping on the Bed. They especially enjoy looking through their books and being read to. (The twins and Amy stayed with us for a month. Bethany was with us for a week.) But, back to the wedding.

Grandparents were invited to the wedding rehearsal held at a lovely oak grove overlooking the pond of the Japan House at the University of Illinois and to the rehearsal dinner at the Crystal Lake Boat House. Rather than having ushers, the parents and grandparents were to process to their seats before the bridesmaids and bride made their way down the aisle. David’s mother and stepfather were there, and I asked them to proceed up the aisle before us so that for once I could feel that Bob and I had been honored/recognized at one of these big family events. Bob’s ex-wife said in a threatening tone, “I’ll fight you for it.” Her husband added something in a similar tone, and the “wedding director” in her loud outdoor voice said, “Well, now we have our first brou-ha-ha.”  Bob didn’t say a word but jerked me up the aisle while I had tears rolling down my face. Such is the fate of a stepmother. It is fair to say that I was shocked and unprepared. I also couldn’t believe that I had become the drama maker. (Bob and I have always felt very close to Jeremiah and Betsy and have enjoyed every minute we’ve been with them – as we continue to do. I know they didn’t intentionally want to hurt me.) Worst of all, the drama wasn’t over.

After some appetizers, a delicious barbecue buffet greeted us at the rehearsal dinner. Bob and I were sitting at one of the tables on the patio and who should walk up with their plates but Bob’s ex and her husband. She asked if they could join us. Again, I was shocked, in disbelief, and couldn’t understand why she couldn’t just leave us alone. I started to get up and remove myself from the situation but then decided to stand my ground (a la I’m not going to take it anymore) and said, “No,” and indicated that there wasn’t really any reason for us to talk during the rest of the event. (Needless to say, there is a whole history of more than thirty years to all of this.) Without my knowledge or consent, the next day Bob apologized to them for my behavior. The rest of the drama and revisionist history was carried out behind my back. Thankfully the wedding and reception were magical, and I’m thrilled that Jeremiah and Betsy are husband and wife. They are made for each other, this couple that was King and Queen of the Uni High prom their senior year. Less than a month later (on July 12th) we were attending another wedding in another place with a totally different type of drama.

It was hard to believe that Maggie, the oldest daughter of dear friends, was getting married - why I remember the first time I saw her just days after her birth! Cindy had generously shared wedding plans with me, and I had looked forward to this little getaway to Chicago for a long time. Indeed, it was a lovely service at a beautiful Catholic church. The bride and her mother were radiant. The father-of-the-bride proudly escorted his daughter to the altar; I didn’t see a tear. The young children, all darling of course, made it down the aisle without incident. The kiss and proclamation sealed it all.
We had several hours before the start of the reception and were relaxing in our room at the Union League Club when I turned my cell phone back on and found a text message from Amy. It said something like, “I have a little medical question. Please call.” I handed the phone to Bob. She answered and said to her dad, “Are you sitting down?”

Sunday, August 10, 2014

Stressed? It Will Be Okay! (Part One)



So says the front of the SERVPRO brochure left with us July 13th after their first of many visits. I display it in the kitchen window to continually remind me that this spring and summer of challenges – if we weren’t having bad luck, we weren’t having any luck at all – would one day be behind us. Bob claimed in an e-mail that he sent out that he was rewriting the book of Lamentations. One friend suggested she was waiting for the arrival of locusts, and another proclaimed that he was really rewriting the book of Job. I don’t think any of it has been God-ordained, but I sincerely hope this is not our new normal. It all started with our trip to Europe in April.


This had been our goal through those months of isolation after Bob’s bone marrow transplant. His doctors had said from the very beginning that Bob would be recovered enough to go on our already planned Bordeaux riverboat cruise. We’d be vacationing with Bob’s brother and his wife and two other dear couples. I’d bought us personal air purifiers to save us from our first and probably worst exposure to viruses – the dreaded airport and airplane. Our first days in Paris were fine. Then we had a couple day bus ride/tour through the Loire Valley to Bordeaux and our riverboat. On that final bus day a man two seats behind us coughed and coughed. Bob immediately said, “I bet I’m nailed.” He was correct. At his birthday dinner that evening he hardly had a voice. He got sicker and sicker, rarely left the cabin, and didn't go on any tours. He did try to periodically eat lunch al fresco with the group and attend dinner, sitting at the end of the table and leaving before we had coffee. He was so sick that I rarely left his side. Then I caught it.


We had signed up for a post-cruise extension in Paris with some of the group, and it was then that I succumbed. I was not happy. The next day we got antibiotics and were just well enough to wander around Paris during the afternoons for another nine days. More than three weeks later from our April
1st departure, we were back in our own bed with more antibiotics. Finally it was May, and I was able to garden. It was also time to head to Holland.


Bob had not wanted to spend his winter recovering in Holland, so we hadn’t been to the condo at all in 2014 until mid-May. It was wonderful to be back at our “happy place,” as Bob’s oldest daughter calls it, until I fell over a heavy wooden crate in the middle of the night. I injured the top of my foot; it had a huge lump and was purple and swollen. The doctor at convenient care x-rayed it, said it wasn’t broken, and predicted that it would take six weeks to heal. (He was right, although it continues to swell and be sore to the touch.) Hobbled or not, too soon we needed to return to Savoy to get ready for Amy’s and the twins arrival from Las Vegas and Bethany’s arrival from Vermont. Grandson Jeremiah was getting married to the smart, talented, and pretty Betsy.

Wednesday, June 11, 2014

The evolution of the hair - Part 2

April 2014
Bob at a sidewalk cafe in Paris - across from the Jardin du Luxembourg

Thursday, March 27, 2014

The Very Good, the Better, and the Best


We are doing fine, we just have not been doing much.

Bob has recovered from the bone marrow transplant, and his blood tests are in the normal range. His physician declared that he had a "very good, partial remission." He's just starting his long-term, low-dose chemotherapy which includes a pill per day, one 20-minute infusion each month, and monthly blood tests. He’s received a few immunizations (like tetanus and flu) but can't start his "baby" shots (measles, mumps, etc.) for over another year. But wait…

The better news is that Bob’s handsome white hair has returned – but now it’s curly. Thank goodness he likes it! He received his first professional haircut since the transplant last week. But wait…

The best news is that his neuropathy is abating and is fairly confined to the bottoms of his forefeet. He hasn't taken pain pills for the last several weeks.

So many prayers answered.

Monday, March 3, 2014

March: In like a lion

This has been an emotional week for me. I think part of it was having Bob start back on maintenance chemotherapy and not having been informed that it would include a monthly infusion in addition to the pill per day. We also hadn't been told that he'd have monthly blood tests and doctor visits, mostly to be sure that the chemotherapy isn't adversely affecting his kidneys, for example. However, the blood tests could also give an indication if the multiple myeloma is becoming more active. I'm hoping it will become routine and not a time filled with dread, that pit in the gut feeling. And, hardest of all is that this is a reminder that Bob has not been cured, that we're not back to "normal," that it's still difficult to make plans.